New York bills · 2025 Regular Session
New York S 1287
Establishes the rare disease advisory council
- Introduced
- In committee
- Passed Senate
- Passed House
- To Governor
- Became law
Sponsors
- Roxanne J. Persaud (Democratic)
Cosponsors (14)
- Joseph P. Addabbo Jr. (Democratic)
- Jake Ashby (Republican/Conservative)
- Cordell Cleare (Democratic)
- Leroy Comrie (Democratic)
- Jeremy Cooney (Democratic/Working Families)
- Nathalia Fernandez (Democratic)
- Patrick M. Gallivan (Republican/Conservative)
- Pamela Helming (Republican/Conservative/Independence)
- Brad Hoylman-Sigal
- Jack M. Martins (Republican/Conservative)
- Rachel May (Democratic/Working Families)
- Dean Murray (Republican/Conservative)
- Gustavo Rivera (Democratic/Working Families)
- Lea Webb (Democratic/Working Families)
Summary
Official abstract published by the New York legislature
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Text versions
Roll-call votes
State vote data last updated Oct 16, 2026, 8:07 AM.
| Date | Vote | Result | Your legislators |
|---|---|---|---|
| Mar 10, 2026 House | Assembly Vote | pass | Set your home in New York to see |
| Feb 10, 2026 Senate | Floor Vote - Version: B | pass | Set your home in New York to see |
| Feb 4, 2026 Senate | Health Vote - Version: B | pass | Set your home in New York to see |
| Mar 19, 2025 Senate | Floor Vote - Version: A | pass | Set your home in New York to see |
| Mar 4, 2025 Senate | Health Vote - Version: A | pass | Set your home in New York to see |
Actions
- Mar 10, 2026 · House
RETURNED TO SENATE - Mar 10, 2026 · House
PASSED ASSEMBLY - Mar 10, 2026 · House
ORDERED TO THIRD READING CAL.47 - Mar 10, 2026 · House
SUBSTITUTED FOR A1296B - Feb 10, 2026 · House
REFERRED TO WAYS AND MEANS - Feb 10, 2026 · Senate
DELIVERED TO ASSEMBLY - Feb 10, 2026 · Senate
PASSED SENATE - Feb 9, 2026 · Senate
ADVANCED TO THIRD READING - Feb 5, 2026 · Senate
2ND REPORT CAL. - Feb 4, 2026 · Senate
1ST REPORT CAL.283 - Jan 8, 2026 · Senate
PRINT NUMBER 1287B - Jan 8, 2026 · Senate
AMEND AND RECOMMIT TO HEALTH - Jan 7, 2026 · Senate
REFERRED TO HEALTH - Jan 7, 2026 · House
RETURNED TO SENATE - Jan 7, 2026 · House
DIED IN ASSEMBLY - May 29, 2025 · House
ORDERED TO THIRD READING RULES CAL.291 - May 29, 2025 · House
SUBSTITUTED FOR A1296A - Mar 19, 2025 · House
REFERRED TO WAYS AND MEANS - Mar 19, 2025 · Senate
DELIVERED TO ASSEMBLY - Mar 19, 2025 · Senate
PASSED SENATE - Mar 10, 2025 · Senate
ADVANCED TO THIRD READING - Mar 5, 2025 · Senate
2ND REPORT CAL. - Mar 4, 2025 · Senate
1ST REPORT CAL.487 - Jan 30, 2025 · Senate
PRINT NUMBER 1287A - Jan 30, 2025 · Senate
AMEND AND RECOMMIT TO HEALTH - Jan 9, 2025 · Senate
REFERRED TO HEALTH