New York bills · 2025 Regular Session
New York A 1296
Establishes the rare disease advisory council
- Introduced
- In committee
- Passed House
- Passed Senate
- To Governor
- Became law
Sponsors
- Amy Paulin (Democratic)
Cosponsors (27)
- Nader Sayegh (Democratic)
- Nikki Lucas (Democratic)
- Joe DeStefano (Republican/Conservative)
- John T. McDonald III (Democratic)
- Steven Otis (Democratic)
- David Weprin (Democratic)
- Samuel Pirozzolo (Republican/Conservative)
- Daniel Norber (Republican/Conservative)
- Michael Novakhov (Republican/Conservative)
- Lester Chang (Republican/Conservative)
- George Alvarez (Democratic)
- Jeffrey Dinowitz (Democratic)
- Erik Dilan (Democratic)
- Linda Rosenthal (Democratic)
- Aron Wieder (Democratic)
- Brian Manktelow (Republican)
- Angelo J. Morinello (Republican)
- Joe Angelino (Republican/Conservative/Independence)
- Rebecca Kassay (Democratic)
- William Colton (Democratic)
- John Lemondes (Republican/Conservative/Independence)
- Judy Griffin (Democratic)
- Joseph Sempolinski (Republican/Conservative)
- Albert A. Stirpe (Democratic)
- Michael Durso (Republican/Conservative/Independence/Libertarian)
- John K. Mikulin (Republican)
- MaryJane Shimsky (Democratic/Working Families)
Summary
Official abstract published by the New York legislature
Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor.
Text versions
Roll-call votes
No recorded votes on this bill.
Actions
- Mar 10, 2026 · House
SUBSTITUTED BY S1287B - Jan 12, 2026 · House
AMENDED ON THIRD READING 1296B - Jan 7, 2026 · House
ORDERED TO THIRD READING CAL.47 - May 29, 2025 · House
SUBSTITUTED BY S1287A - May 29, 2025 · House
ORDERED TO THIRD READING RULES CAL.291 - May 29, 2025 · House
RULES REPORT CAL.291 - May 29, 2025 · House
REPORTED - May 27, 2025 · House
REPORTED REFERRED TO RULES - Feb 4, 2025 · House
REPORTED REFERRED TO WAYS AND MEANS - Jan 29, 2025 · House
PRINT NUMBER 1296A - Jan 29, 2025 · House
AMEND AND RECOMMIT TO HEALTH - Jan 9, 2025 · House
REFERRED TO HEALTH